The National Cancer Registration Service is run by Public Health England and is responsible for cancer registration that has been an integral part of the NHS for over 50 years.
The Service aims to collect data on all cases of cancer that occur in people living in England. The data is used to support public health, healthcare and research. We provide data to the Office for National Statistics on new cases of cancer and cancer survival, monitor new cases of cancer in the population and look at trends and geographical patterns so that we can detect risk factors and cancer clusters. We work with others in the NHS to assess the quality of care for all individuals treated for cancer.
We only share personal data that might allow you to be identified if we have your permission to do so, or the group or individual requesting the data has authority from the Confidentiality Advisory Group of the Health Research Authority. We do provide data back to your own clinicians because they are directly involved with your own care and already know about you.
If you would like to see the information we have on you we would be happy to share it with you – but we do this through your general practitioner (GP) to make sure that the information we provide is just given to you. We are also working with Cancer Research UK on a patient portal so that you can access your own data held by the National Cancer Registration Service